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  1. December 21, 2017

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    Do I have POTS - (vid/pics) - where do I go from here? (very long...
  2. December 17, 2017. Ehlers-Danlos Syndrome 101 - An Interview With An Eds Mom... (https://www.care.com/c/stories/559/ehlers-danlos-sy ndrome-101-an-interview-wit/) Beth is a mom and the blogger behind "Our life with Ehlers-Danlos Syndrome," where she shares the experiences of her and her family. We had some time to connect. to this one medication. A cervical fusion was being held out as a likely treatment and we have managed to avoid that serious surgery, thanks to the Diamox.
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    2 1/2 years ago, at her lowest point and most ill, Em sat in a wheelchair with Dr. Tinkle and said emphatically that she wanted out of the wheelchair and to be able to be in a production of Joseph and the Technicolor Dreamcoat that was being done at the theatre that summer. He acknowledged […] ofoutrageousfortune .
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    Dosages, Tips, Etc… | Our Life with Ehlers Danlos Syndrome
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    Your Questions Diamox, Sleep, Hydrocephalus | Ehlers Danlos...
  9. January 09, 2018. Dr. Diana Driscoll With an Exciting Ehlers-Danlos Update - The Eye... (https://theeyedocblog.com/dr-diana-driscoll-with-an -exciting-ehlers-danlos-update/) Dr. Diana Driscoll With an Exciting Ehlers-Danlos Update. Posted on November 29, 2010 | 1 Comment. Some of you are aware that a soft cervical collar at night time has helped us, as has Diamox (a diuretic that crosses the blood-brain barrier , taking fluid pressure off of our brains). This has been a consistent finding, but .
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    6 May 2013. Our wonderfully chaotic life with 3 kids, Chiari I Malformation, Ehlers Danlos Syndrome, homeschooling and how we handle the everyday balancing act of life. . Dr. Francomano has been treating Nick's high intercranial pressure symptoms with Diamox and it works. Dr. Keating could find no structural . i1
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    New med for my Intercranial hypertension pseudo tumor.I keep falling down:( Let's talk about DIAMOX! - YouTube. Let's talk about DIAMOX updated - YouTube · Intracranial PressureMultiple Sclerosis .
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    Diamox Pointers | Our Life with Ehlers Danlos Syndrome
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  18. February 08, 2018. the Eye Doc blog : Chronic Cerebrospinal Venous Insufficiency (http://www.thisisms.com/forum/chronic-cerebrospinal -venous-insufficiency-ccsvi-f40/topic15707.html) Cece, thank you for finding this terrific article, "Update on Ehlers-Danlos and CCSVI," written by Dr. Diana Driscoll, an eye doctor who has EDS and had. Some of you are aware that a soft cervical collar at night time has helped us, as has Diamox (a diuretic that crosses the blood-brain barrier, taking fluid .
  19. February 06, 2018
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    7 Jun 2011. In some studies these children were treated with Diamox, and in other studies the children were merely observed. It is the author's hypothesis that delayed motor development found in Ehlers-Danlos children is due at least in part to hydrocephalus, and not merely due to flexible joints, as previously .
  20. February 02, 2018. Diamox and Alkalinity | PrettyIll.com (http://prettyill.com/videos/watch/diamox_and_alkali nity) If you are following The Driscoll Theory and are on Diamox, you know how hard it can be to maintain alkalinity. Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular .
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    A few weeks ago he said he thought I had Ehlers Danlos Syndrome. I had heard of it. Even if cervical instability requires a fusion or a Chiari Malformation calls for a decompression, using Diamox to reduce the CSF pressure above the brain could make those surgeries more successful. CCSVI (Chronic .
  23. February 12, 2018

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    Diamox | Our Life with Ehlers Danlos Syndrome
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    4 Sep 2014. Pseudotumor Cerebri | The Johns Hopkins Headache Center Pseudotumor Cerebri is another name for Idiopathic Intracranial Hypertension, which is an unusual frontal headache with back of neck pain that is worse when lying down than upright. This is the opposite of the more common Intracranial .
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